Thursday, September 30, 2021
A Day in the Life of Multiple Sclerosis 093021
Wednesday, September 29, 2021
A Day in the Life of Multiple Sclerosis 092921
Tuesday, September 28, 2021
A Day in the Life of Multiple Sclerosis 092821
Monday, September 27, 2021
A Day in the Life of Multiple Sclerosis 092721
Good Morning from the Celebrity Suite of the Wyndemere Condominiums on Turtle Creek. Today is Monday, September 27.
Happy Birthday to:
@Randy Ardis
@Lynnette Townsend
@Terrance Annibabba
Each year on September 27th folks enjoy a tall, frosty glass to celebrate National Chocolate Milk Day. Ain’t nothing wrong with a glass of chocolate milk. But do you know how chocolate milk came to be?
In the late 1680s, an Irish-born physician by the name of Sir Hans Sloane invented the chocolatey beverage. When offered the position of personal physician to an English Duke in Jamaica, Sloane jumped at the opportunity. Jamaica interested the naturalist in him.
While in Jamaica, Sloane encountered a local beverage. The locals mixed cocoa and water together. However, when Sloane tasted it, he reported the flavor to be nauseating. After some experimentation, the doctor found a way to combine cocoa with milk. The creamy combination made it a more pleasant-tasting drink. Years later, Sloane returned to England with the chocolate recipe in hand. Initially, apothecaries introduced the concoction as a medicine.
Generations later, chocolate milk lovers can enjoy this treat in a variety of ways. It can be purchased premixed by the jug or individual serving. For a custom mix, powders and syrups allow us to make it as chocolatey as we like at home.
Who knew, right?
Busy day today - heading to UT Southwestern Spa and Resort in a couple of hours for my 8am plasma exchange and then back home for an afternoon full of work and meetings.
What’s on your schedule today?
Anyhoozle, I hope you all have a wonderful day and whatever you do today and every day, do it with kindness in your heart. The world is full of kind people. If you can’t find one, be one! And as always:
...wear a mask
...be kind and compassionate to one another
...dance/sing/laugh it out. It might not help but it sure as hell couldn't hurt.
Peace, Love and Blessings to you all. -AJ
Sunday, September 26, 2021
A Day in the Life of Multiple Sclerosis 092621b
The last 12 months have really made me question my faith. In February of 2019, at the age of 54, I was diagnosed with Relapsing / Remitting Multiple Sclerosis. At the age of 55 I had my first relapse which slowly took away my ability to walk but I have gained that back for the most part.
I have never once asked God why he did this to me, but I have asked him what he wants me to do with it? Why he would do this to anyone? Why would a God make my family and friends suffer through this as well?
I decided a Good God wouldn’t. And I yelled at him and cussed at him and called him an a-hole. I stopped attending church and the church board meetings I was a member of - but I still kept yelling at God and calling him an a-hole.
During this time, my friends were looking out for me and caring for me - getting me to doctors appointments and taking me to physical therapy and I continued to yell at God. My bosses and colleagues at work continued to support me. An army of people were praying for me. And as I was still on the edge of abandoning my faith, I raised over $11,000 for MS in two weeks and I continued to call God an A-hole.
One of my best friends said, “I don’t want you to abandon your faith - but if you do, I will still love you” -and I continued to call God an A-Hole.
When my relapse reached its peak and my legs quit working, that was it - I was done with God and I told him so - and I called him an A-hole - repeatedly!
I was admitted to the hospital 3 times and I continued to talk to (yell at) God and call him an A-hole.
During my ten-night stay on the Celebrity wing of the Baylor, Scott and White Spa and Health Club (the hospital), I received top-notch care - the nurses would come in and visit with me, play cards and keep me company and I continued to talk to God and yell at God and call him an a-hole.
I received flowers, candy, cookies and cupcakes which I shared with the nurses and techs every time they came in my room. I received notes, phone calls, text messages from friends and family praying for my recovery while I was still yelling at God and calling him an A-Hole.
My friends and I had planned to go out of town the second weekend I was in the hospital. Obviously, I could not go, but while they were gone, my best friend had planned for someone to come sit with me each of the 5 days they were away so I would not be alone - each day was a surprise and it was FANTASTIC and I continued to yell at God and call him an A-Hole.
I talked to pastor Rachel - the most wonderful pastor in the universe - via emails and texts. One day she came to visit me in the hospital and just as I was about to tell her I was DONE with church and God, she said, “Andy, the fact that you are talking to God and yelling at him every day and calling him an a-hole tells me your faith is still there and you still have a relationship with God.” (She has this annoying habit of reeling me in).
Just as she said that, I thought of all the care I had received in and out of the hospital - my wonderful parents and friends who continually prayed for me - my friends who cared for me and made sure I got to all my appointments - the love I received via notes, texts, calls from everyone telling me if I needed anything to let them know.
And as I sit here typing my blog - as I sit here pain-free as a result of the treatment I received and the prayers people said for me, I realize #1 - I want my own tv show. And #2 - Pastor Rachel was right - I do have a relationship with God - albeit, a dysfunctional relationship - but I never abandoned my faith. However, I did ignore all of the things he was doing for me - the constant care from friends, family, doctors and nurses - support from work, my church and everyone.
My faith is there. I still have a relationship with God but I have been too angry to see all of the things he was doing for me.
Maybe I am the a-hole.
A Day in the Life of Multiple Sclerosis 092621
Good Morning from the Celebrity Suite of the Wyndemere Condominiums on Turtle Creek. Today is Sunday, September 26.
Happy Birthday to:
@Mark Thibodeau
National Pancake Day on September 26th sets up a tall stack of syrupy goodness to celebrate!
Also known as Johnnycakes, griddle cakes or hotcakes, this batter-made breakfast item dates back more than 30,000 years. In fact, it may be the oldest breakfast food in history.
It became a traditional part of Fat Tuesday celebrations when revelers would feast before fasting. They still do! The thin cakes can be rolled and filled with fruit and other fillings. Usually, though, they’re stacked and drizzled with flavored syrup.
While served mostly as a breakfast item, pancakes along with bacon, ham, hashbrowns and other morning offerings also make a delicious supper. Breakfast for dinner is a nice change of pace in many homes.
I LOVE breakfast for dinner. And I love my pancakes with bananas or blueberries….and a side of crispy bacon…..and hashbrowns………and cheese grits…..and piping hot coffee.
Oh well - I can dream, can’t I? LOL
Yesterday was a total BUST. After the plasma exchange I had on Friday, I was wiped out. It’s going to be another sunny, fall day in Big D today. I’ve got church (online) this morning and I also need to do a little work this afternoon since I am going in for another plasma exchange first thing in the morning.
While going in for a plasma exchange is not the most convenient thing in the world, it is necessary for me right now. And it is actually NOT a pain in the tucus. Everyone in the Aphaeresis department is just so flipp’in nice. (The people that go with me to my plasma exchange can attest to this). When I was there on Friday, no less than four nurses came by to say hello. They heard I was there and wanted to stop by and chat - Hand to God!
I have gotten to know them all pretty well. I guess that happens when you go in once or twice a week for four months. LOL
What’s on your schedule today?
Come join us for church this morning at 11am at Oak Lawn United Methodist Church (or online on Facebook Live). All are welcome at OLUMC.
Anyhoozle, I hope you all have a wonderful day and whatever you do today and every day, do it with kindness in your heart. The world is full of kind people. If you can’t find one, be one! And as always:
...wear a mask
...be kind and compassionate to one another
...dance/sing/laugh it out. It might not help but it sure as hell couldn't hurt.
Peace, Love and Blessings to you all. -AJ
Saturday, September 25, 2021
A Day in the Life of Multiple Sclerosis 092521b
OK…I just needed to get that out of my head and organize it / see it on paper / computer. I am starting to write things down more and more. While MS has only attacked my spinal cord so far, there is every chance it could attack my brain (not sure why it would want to - there’s not much up there - LOL) and begin to rob me of things - memories. Mind you, I have faith that is NOT going to happen with the treatment plan I am on, but still, it is a remote possibility so I am writing / typing the good stuff down so it is not lost. Also, I may be a little paranoid.
A Day in the Life of Multiple Sclerosis 092521
Friday, September 24, 2021
A Day in the Life of Multiple Sclerosis 092421
Thursday, September 23, 2021
A Day in the Life of Multiple Sclerosis 092321
Wednesday, September 22, 2021
A Day in the Life of Multiple Sclerosis 092221
My Life with MS 052525
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