Saturday, April 6, 2024

My Life with Multiple Sclerosis 040624

Hellooooooooooooooooooooooooooooooooooooooooo,
Possuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuums!

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Coming to you from the Celebrity Suites of the Wyndemere at Turtle Creek Condominiums in Dallas, Texas, today is Saturday, April 6, 2024. It’s going to be a cloudy day with a high of 78 degrees.

Happy Birthday to:

Michael Little
Suzanne Shumway Loftis

Good Afternoon, Possums and Happy FridaySaturday

It’s been a busy two days but absolutely fun and engaging and productive. It almost feel like I have my old life back (I know I don’t) - before the disease (that’s for @Shannon Brown ). However, embracing my ever-changing disease is like playing a different version of Monopoly called “Monopoly but you have Multiple Sclerosis”. Spaces on the board include “Go have a plasma exchange”, “Go have an MRI”, “You got your Tax refund, collect $$$ (FYI, I haven’t gotten my tax refund yet), “You showered in record time, you deserve a cocktail”, “You took your pills on time, you deserve another cocktail”, “You are finding your footing with Podcasts, take a nap”, “You made it to all of your Board Committee meetings, enjoy a night out with your friends” and the dreaded “Social Security is still dragging their ass, you have to eat Tuna Helper again (I don’t really have to do that).

OK, I don’t reward myself with cocktails and I don’t eat Tuna Helper, but Social Security is dragging their ass. And each day is very much like a roll of the dice. I never know how I am going to accomplish my daily tasks, if it’s going to be a completely frustrating day or a very good day with no hurdles or hoops to jump through.

This evening, we (my friends and I) are headed to “Toast to Life” - the Resource Center’s Annual fundraising event. The theme is “On the Red Carpet”. Since we started the podcast and I have been recognized for “hosting said podcast” in public one time by someone I know, yes, I do feel like a celebrity - LOL.

People will be dressed to the nine’s in all of their glitz and glamour. I am dressing for comfort rather than appearance. You can do that when you’re in a wheelchair. However, my shirt is a polo covered (within an inch of its life) in black sequins. I guess I’ll have a little glitz.

Disability Completion Percentages: No change

SSA Case Status - 73% Complete
Supplemental SSA - 66% Complete

Kankle News - I am still kankle-free.

Anyhoozle, that’s all I have for today. What’s on your calendar? I hope you all have a SPECTACULAR day. Do everything with kindness in your heart. The world is full of kind people. If you can’t find one, be one!

To all of my fellow MS Warriors, keep fighting the good fight.

And to all MS Warrior Supporters, Thank You! Your support means everything.

Peace, Love and Blessings to you all. -AJ

#strengthpatiencepeacefaith
#hopelovejoygrace
#AndyStrong
#MS_Sucks
#2024Possibilities

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My Life with MS 052525

HELLO, POSSUUUUUUUUUUUUMS! Coming to you from the Celebrity Suites of the Wyndemere at Turtle Creek Condominiums in Dallas, Texas. Today i...