Friday, December 15, 2023

My Life with Multiple Sclerosis 121523

Hellooooooooooooooooooooooooooooooooooooooooo,
Possuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuums!

Coming to you from the Celebrity Neighborhood of Creekwood in York, South Carolina. Today is Friday, December 15. It’s going to be a mostly sunny day with a high of 53.

Happy Birthday to:

Lyle Maddox

Good Morning, Possums and Happy Friday and TGIF and HappyWeekend. I cannot believe I have already been home for an entire week.

FAVOR: Facebook/Meta is considering paying me for my content. Please Like and Share my post (especially Share). I am on a trial basis for a month. This would be a new revenue stream and since I can’t work a regular 9-5. Thanks in advance.

I woke up at 3:30am - couldn’t go back to sleep, so I got up and rolled myself into the den to quietly watch television. By then it was a little after 4:00am. Not because the den is so far away from my bed, but because every time I transfer from my chair to a chair at a table or my bed to my wheelchair, I have to psych myself up for it and tell myself I can do it by myself without incident. I know that probably sounds incredibly silly, but it’s true.

There can be several failed attempts before the transfer actually happens if I think the chair is not close enough or rechecking to make sure my wheelchair is locked and the keys are out of the ignition (LOL). But eventually it happens…sometimes slower than others. If I have friends or family helping , not goes much faster.

But it is not the same for everyone with Multiple Sclerosis. Just watch the Ocrevus commercials on television (OK, here we go again). Everyone is smiling and really happy they have MS and they have found what almost seems like a cure (given the commercial and the way Ocrevus is presented to the viewer. I half expect to see this commercial leading into another commercial of a mother a daughter holding hands and leaping through a meadow of wild flowers only stopping to have ‘the talk’ about her body changing). I know that has nothing to do with it but it just all gets underway skin. Too much?

But Ocreveus, the biggest culprit IMHO, is not the only televised prescription medication guilty this. Also, I could be slightly bitter that it was not strong enough to handle my MS. My MS is stronger and more resistant to Ocrevus (sadly, that makes me feel better).

I digress…

I remember when the strongest drug advertised on television was Doan’s pills for back aches (remember those). Growing up, I do not ever recall prescription drugs advertising on television. Regardless, they (drug companies) need to knock it off. Not just because of my crusade against Ocrevus (and for anyone that Ocrevus works, I don’t begrudge you one bit of relief and happiness), but because it puts ideas in the minds of people that this is going to help them/cure them. Let the doctors and specialists decide that….not the big, fat stupid, money-grubbing drug companies. Again, just my opinion. Sorry if that offends anyone working for the drug companies, but I cannot be the only person (Not just with MS) that feels like this.

In there new year, I’m considering doing a series of videos showing how I have to do things- like transferring to a chair or the bed - cooking - or even just getting a glass of iced tea - just so people can see what it takes. Stay tuned.

Now, I need to get ready for a call withy financial advisor. I have given her the $50 I have saved in hopes she can turn in to much, much more. It should be a depressing call so I may start happy hour earlier than 2:00pm….I mean 5:00pm

In other news:

SSA Case Status - 48% Complete
Supplemental SSA - 41% Complete

Kankle News - I have a puffy foot and a normal foot.

Podcast - If you are interested in being on our podcast, have questions for any of the cohosts, or have a topic that needs to be addressed and discussed, please email:

ifosh99@gmail.com

If your topic is selected, we will get in touch with you. Questions you have for any of the cohosts will be answered on air.

FYI:

Christmas is in 10 days.
Kwanzaa is in 11 days,
2024 begins in 17 days.

Anyhoozle, that’s all I have for today. I hope you all have a GREAT day! HAPPY HOLIDAYS!

Whatever your day holds and whatever your plans may be, I wish you all a SPECTACULAR day. Do everything today with kindness in your heart. The world is full of kind people. If you can’t find one, be one!

To all of my fellow MS Warriors, keep fighting the good fight. And to all MS Warrior Supporters, Thank You! Your support means everything.

Peace, Love and Blessings to you all. -AJ

#strengthpatiencepeacefaith
#hopelovejoygrace
#AndyStrong
#MS_Sucks

No comments:

Post a Comment

My Life with MS 052525

HELLO, POSSUUUUUUUUUUUUMS! Coming to you from the Celebrity Suites of the Wyndemere at Turtle Creek Condominiums in Dallas, Texas. Today i...