Wednesday, August 30, 2023

My Life with Multiple Sclerosis 083023

Hellooooooooooooooooooooooooooooooooooooooooo, 
Possuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuums!  

Coming to you from the Celebrity Suite of the Wyndemere Condominiums at Turtle Creek. Today is Wednesday, August 30 and the high temperature is going to be 97 degrees today - AGAIN!

Happy Birthday to:

Bill Deramus

Good Morning, Possums and Happy Wednesday and Happy Hump Day. We made it talk way through the week. 

It’s been a busy morning. My best Gal Pal, Sallie Ann Plaxico , picked me up at 7:45am. We proceeded to Lucky’s for a tasty breakfast before heading to my Neurologists appointment.

My appointment went very well - good news all around:

-My MRI (the one I had in June) was like night and day from the one I had in December. I think we may have found a drug that will work on me (until they find a cure). HUGE sigh of relief!

-I have another MRI in December.

-Starting back to having PLEX every week instead of every two weeks.

-She requested a consultation with Pulmonology to see if there is anything I can do about the ‘Kankles’ / faulty valve in my leg. Stay tuned.

-Trying figure out how I can get on Ozempka and insurance would approve. Stay tuned.

All good stuff, right? There was one thing that made me sad. The item that hurt the most is:

-I am still on the list of top ten problem children just not #1 anymore. I am OK with because she said I am still in the top 3 AND I would never be off that list.


In other news:

Wheelchair Status -My new wheelchair is scheduled to arrive at my casa on 10/4. One more month in my current deathtrap.

SSA Case Status - Up from 19% to 22% Complete
Supplemental SSA - Up from 9% to 14% Complete

Kankle News - I have one kankle.

Podcast - running our first test on Thursday

Anyhoozle, that’s all I have for today. I hope you all have a GREAT day!

Whatever your day holds and whatever your plans may be, I wish you all a SPECTACULAR day. Do everything today with kindness in your heart. The world is full of kind people. If you can’t find one, be one!  

To all of my fellow MS Warriors, keep fighting the good fight. And to all MS Warrior Supporters, Thank You! Your support means everything.

Peace, Love and Blessings to you all. -AJ

#strengthpatiencepeacefaith
#hopelovejoygrace
#AndyStrong
#INeedaJob
#MS_Sucks 

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