Good Morning, Possums, from the Celebrity Suite of the Wyndemere Condominiums on Turtle Creek. Today is Friday, April 1. It’s going to be a mostly sunny day with a high of 76 degrees. It looks to be a delightful weekend as well.
Happy Birthday to:
Well, it’s Friday and the weekend here and it is April Fools Day. Sadly, there is nothing ’April Fools’ in this particular post.
Yesterday turned into a bit of an exhausting day for me. I am not looking for pity, sympathy or ‘I’m sorry.’ I post this as part of my journey with multiple sclerosis.
Yesterday started off well enough but it slowly turned into a week of appointments and planning and scheduling that I was not prepared for. I spoke to my neurologist and we set the wheels in motion for the next week:
Monday morning - I am headed into the hospital to have the catheter in my chest removed and a permanent port put in it’s place so I can continue with my plasma exchange every Friday. It’s a simple enough procedure and I should be home by noon. This is great - I can take a real shower now!!!
Tuesday - I took off work (just in case). The other shoe may decide to drop and I want to be ready.
Wednesday - I report for jury duty (but I am not above playing the MS card. Also, my Neurologist doesn’t want me to go so she is writing a letter for me.
Thursday - I’m headed back to the hospital for another three-hour MRI. My Neuro-Team (that’s right, I have a team now) wants to see what is going on in my brain and spinal cord so they can figure out why I keep breaking through my treatment plans.
While I am NOT excited about this, my neurologist and I understand each other and she knows I need enough Ativan to stop a charging rhino to get me through three hours in that damn machine.
Friday I return to the hospital for my plasma exchange and to try out my new port.
Why am I doing all of this (except for jury duty)? Well, I have to have all of this done because, my neurologist also told me that I was not eligible for the stem cell study and all of this prepares me to settle in and formulate a new plan.
As delightful as next week sounds, it is not what I had hoped for.
Yes, I am extremely disappointed. I think I built it up too much in my head - got my hopes up - put all my eggs in that basket sort-of-thing - and that’s on me.
You process your way, and I’ll process it mine.
No meetings at work today - only PLEX this afternoon followed by a martini before my ‘processing’ begins. Hell, I may have one while I am processing.
Anyhoozle, I need to mainline some coffee / caffeine. It’s time to get this day started. I wish you all a SPECTACULAR day and weekend.
Make it a great day and do everything today with kindness in your heart. The world is full of kind people. Be one of them! And as always:
...wear a mask (when appropriate)
...be kind and compassionate to one another
...dance/sing/laugh it out. It might not help but it sure as hell couldn't hurt.
Peace, Love and Blessings to you all. -AJ
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